It’s been a while since I last wrote, it’s been pretty wild around here. I think this post will touch on all three topics. Children, chickens and the dreaded Colitis.
A nasty head cold hit the house and got all three kiddos, my oldest didn’t fare so well and ended up with an ear infection, sinus infection and a partially collapsed lung. She has finished all her antibiotics, we are continuing with her puffers and deep breathing exercises then see her doctor for a follow up this Friday. She is feeling MUCH better, thank goodness because at one point I thought she’d never stop coughing and I just wanted to cough for her.
My son is off on an experience of a lifetime angling some monster fish in Canada’s great north with his Grandpa. I’m missing him immensely and have thoroughly enjoyed the pictures being sent home.
My husband has been very busy getting ready for our new venture on the farm. We’ve decided to have a go at raising Berkshire pigs! I’m not totally convinced I’ll find the time between being sick and taking care of the kids but hey it’s worth a shot and the kids will love it. We have also put an order in to up our chicken numbers and will have twenty new chicks come may. Yikes! I’m in for it. You’ll have to wait for photos of the new pig pen and new chicken enclosure.
Last but not least, the Colitis. The Doctor feels the Humira isn’t working as well as it is expected to. I agree, I’ve been pretty sick. Also having lots of other inflammatory symptoms such as joint pain, psoriasis and the soles of my feet being quite swollen and itchy (very weird). I’ve also been having what I can only describe as “attacks” where I have intense stomach pain (not colon pain) and nausea which gets my whole body upset and I start throwing up and having diarrhea. My Doctor is concerned I may have an ulcer so I was booked for a Gastroscopy and Colonoscopy to assess how much worse my colon has gotten and to see if I do have an ulcer.
Today was/is prep day, oh joy. First starving myself then proceeding to drink oral purgative until I have the uncontrollable urge to empty my bowels. Yuck. I’m sure you can imagine I’ve done this many times seeing I’ve had the disease for twenty years but it’s equally as awful EVERY TIME. My darling husband stayed home from work today so I didn’t have to worry about anything but feeling awful. Bless his soul.
I’m feeling a little nervous about results from tomorrow’s tests. I can’t help but worry about if I’ll hear that dreaded word, “cancer”. My doctor is quite understanding about my anxiety and spares me by making sure I don’t remember a thing. I’ll be sure to update you all after I come around and settle back into routine.
Wish me luck!
Every Tuesday night I have a date with a needle. It’s time I touch on this topic, poop.
The never ending battle of what I can and can’t eat, pain, exhaustion and which medication to try next.
When I was twelve Years old I was diagnosed with Ulcerative Colitis. I didn’t understand what that meant for me long term at the time. What i did know and feel was embarrassment and wondering “why me?”
I remember it being “in the way” when it came to my social life as a teenager. I remember it being embarrassing when with boyfriends. Keeping some of my first jobs was a total fail because they caused a new stress and with stress comes “flares”. For those of you who don’t know, a flare in my world is essentially uncontrollable bowel movements and pain in excess.
This year I will hit TWENTY years of battling (and often being battled by) this disease. I have tried every drug available on the market for it. Some even not approved and still on study.
I have been part of countless research groups and filled out a million surveys with hope of contributing to the effort to find a cure.
I am pushing the limits and defying the odds of time with the disease and risk of developing cancer.
It’s not all sad, even though most of my life has been lived with Ulcerative Colitis. I married an amazing, patient and understanding human and cooked and birthed three healthy children. I believe they are my purpose here. They push me everyday to function when often I don’t want to. They encourage me to smile, laugh and play.
I am currently trying what I’ve been told is my last drug option. I inject it into my body every Tuesday night. My kids cringe and can’t believe mommy can just stick a needle in without crying.
It has settled my symptoms some, but certainly has not achieved remission or given me symptom free results. I hope it does. After all, isn’t that all I can do?
So here is to Tuesday nights and my dates with a needle!
Some call it a winter wonderland, some say too cold. Living on the prairie in Canada is certainly not easy, especially when you live rurally, have three kids and school has been cancelled due to “extreme conditions”.
I planned on a quiet day around the house, I imagined myself obsessively wiping the kitchen down, dusting and doing laundry while listening to the “Fifty Shades Of Grey” soundtrack on repeat. No, Old Man Winter had a different day planned for me.
It was only 8am when I realized it was going to be a “trying” day. I didn’t have anything planned for the kids, sure they had pre made lunches in the fridge but it was supposed to be hot lunch day. All I had put in the things were juice boxes and granola bars! I thought I was golden. So, no left overs to feed them lunch along with no activities planned. I felt doomed.
I survived a couple games of “Operation”, caught up on some much needed reading with the older two and crawled around chasing the baby for a while. “That’s it, who wants to watch tv?!” You can’t blame me, it was miserable outside. We had seen some melting in the days before. I really felt like spring was here but it had turned so dark, gloomy and VERY windy. I was no longer feeling motivated and officially counting down the minutes to my husbands arrival from work.
This sort of thawing and freezing can be pretty bad for many reasons but while I was looking out the window and grumbling about the weather I saw something pretty damn cool, an opportunity to make a great memory with the family.
By the time supper was over and cleaned it was already starting to get dark but I wasn’t going to let this golden opportunity which had appeared seemingly overnight go to waste.
“This is the stuff I hope they remember, these moments we cherish”
It was the summer of 2016, my third was finally crawling, there was enough wind to blow those pesky mosquitoes away, I wasn’t stuck on the toilet and the sun was shining. Basically, the stars had aligned. It was time to bring my darling daughter out to meet my babies.
Of course since this was seemingly a rare occurrence I thought I had better start taking pictures. Soon enough my chickens found us sitting in the grass, I was so excited for them to meet. “Look Hazel, mommy’s chickens!” Then I noticed something, they were all looking at her….. a lot. Took me a while but I finally realized my darling daughter was holding pretend plastic corn on the cob. Not good. Bad mommy. One of the stinkers got a peck in before I whisked her up and decided it was time to go back inside.
Hazel was still in awe of those funny looking birds while I took off her hat and prepped a snack. While doing so I thought I should send some of the adorable pictures I had just taken to my sister in law (who was at the time living in Washington D.C) to show her how the chicks had grown and how interested the baby was in them.
This was when she said it “Kim, you really should start a blog, you take such great pictures and there is always something going on over there”. I told her she was crazy.
Here we are now. I think I just might enjoy this, I hope you do too. Some days are goofy, some sad, and some inspired. I’m officially buckled in and ready for the ride. Wanna come?